California
CFS & FMS Support Groups Directory
Chronic Fatigue Syndrome
& Fibromyalgia Syndrome
www.cacfsfms.org
Last
updated March 11, 2013
WHAT
SHOULD GO WITHOUT SAYING MUST BE SAID
The individuals who run
these support groups are themselves sick, often very sick. Meeting dates, time,
and places change as the hosting site changes their policies and schedules relating
to the provision of free meeting space for local support groups, and as support
group leaders get sicker or need a break and no one else steps up to fill the
role.
Sometimes groups let me know, most often they don't - we're all cognitively impaired, so roll with it, please. For those who have some difficulty understanding just what support groups are and do--and are not and don't do--please read my article, Information & Support: Setting Some Necessary Boundaries for Support Groups and Physicians.
Support groups leaders die, move elsewhere, or 'retire', and don't think to let those of us who maintain these indexes of support groups know about the changes (which is okay, I'm just saying...). Because some callers harrassed and annoyed some volunteer group leaders and their families, or called at totally inappropriate times of day or night, I have removed most of the phone numbers from these listings to protect the lives and limited energy of those who give of their severely restricted functional time to others.
--Melissa Kaplan, March 2013
Support groups are listed by county. To find a support group in your area, please select the county from the list below, and check the adjacent counties, as well, as some groups reach beyond county borders. If you cannot find any support groups listed for your area, please try these additional resources.
Alameda
Alpine Amador Butte Calaveras Colusa Contra Costa Del Norte El Dorado Fresno Glenn Humboldt Imperial Inyo Kern Kings Lake Lassen Los Angeles | Madera
Marin Mariposa Mendocino Merced Modoc Mono Monterey Napa Nevada Orange Placer Plumas Riveride Sacramento San Benito San Bernardino San Diego San Francisco San Joaquin | San
Luis Obispo San Mateo Santa Barbara Santa Clara Santa Cruz Shasta Sierra Siskiyou Solano Sonoma Stanislaus Sutter Tehama Trinity Tulare Tuolumne Ventura Yolo Yuba |
Email Support Groups The following are small, private email lists in which the members provide information and support for one another. CarouselNet
- The Carousel Network (CFS/FMS/Lyme Disease Support) | ||
Add a support group or email list... |
Abbreviations
The following abbreviations are used in this site:
CFIDS | chronic fatigue immune dysfunction syndrome (aka CFS) |
CFS | chronic fatigue syndrome |
CMP | chronic myofascial pain (formerly myofascial pain syndrome) |
CND | chronic neuroimmune(endocrine) disease/disorders |
EI | Environmental Illness (aka MCS) |
FM, FMS | fibromalgia (syndrome) |
GWI, GWS | Gulf War illness, Gulf War syndrome |
MCS | multiple chemical sensitivities |
ME | myalgic encephalomyelitis |
PWC | persons with CFIDS/CFS |
TBI | Tick-borne infections |
To
Add or Modify A Group
Please
send the following information via email:
Original
resource created by Marc O. Simon
Currently maintained by Melissa
Kaplan
You are on page www.sonic.net/melissk/cacf/index.html