CFS & FMS Support Groups Directory
Chronic Fatigue Syndrome & Fibromyalgia Syndrome
Last updated March 11, 2013
SHOULD GO WITHOUT SAYING MUST BE SAID
The individuals who run these support groups are themselves sick, often very sick. Meeting dates, time, and places change as the hosting site changes their policies and schedules relating to the provision of free meeting space for local support groups, and as support group leaders get sicker or need a break and no one else steps up to fill the role.
Sometimes groups let me know, most often they don't - we're all cognitively impaired, so roll with it, please. For those who have some difficulty understanding just what support groups are and do--and are not and don't do--please read my article, Information & Support: Setting Some Necessary Boundaries for Support Groups and Physicians.
Support groups leaders die, move elsewhere, or 'retire', and don't think to let those of us who maintain these indexes of support groups know about the changes (which is okay, I'm just saying...). Because some callers harrassed and annoyed some volunteer group leaders and their families, or called at totally inappropriate times of day or night, I have removed most of the phone numbers from these listings to protect the lives and limited energy of those who give of their severely restricted functional time to others.
--Melissa Kaplan, March 2013
Support groups are listed by county. To find a support group in your area, please select the county from the list below, and check the adjacent counties, as well, as some groups reach beyond county borders. If you cannot find any support groups listed for your area, please try these additional resources.
Luis Obispo |
Email Support Groups
The following are small, private email lists in which the members provide information and support for one another.
|Add a support group or email list...|
The following abbreviations are used in this site:
|CFIDS||chronic fatigue immune dysfunction syndrome (aka CFS)|
|CFS||chronic fatigue syndrome|
|CMP||chronic myofascial pain (formerly myofascial pain syndrome)|
|CND||chronic neuroimmune(endocrine) disease/disorders|
|EI||Environmental Illness (aka MCS)|
|FM, FMS||fibromalgia (syndrome)|
|GWI, GWS||Gulf War illness, Gulf War syndrome|
|MCS||multiple chemical sensitivities|
|PWC||persons with CFIDS/CFS|
Add or Modify A Group
Please send the following information via email:
resource created by Marc O. Simon
Currently maintained by Melissa Kaplan
You are on page www.sonic.net/melissk/cacf/index.html