D
NETWORK INTERNATIONAL
Selected Resources on the Web
for Spinal Cord Injury Information
This is a selective listing of WWW resources on SCI. These Links are provided
solely as an informational resource. The Links listed below are not
maintained by, affiliated with, or endorsed by SCINI.
We will develop specialized listing of resources (including journal articles, books, news items, organizations, factsheets, and health information) on a specific topic if you wish (there is a fee involved). Please contact us at: spinal@sonic.net
- Ask NOAH About Spinal Cord Injuries & Disorders; Head Injuries: links to Web resources for consumer health information in both English and Spanish
- Cure Paralysis Now: maintains a database of documents on spinal cord paralysis and its cure; search by keyword or by topic; section on What's New in the Field; discussion forum
- Digital Librarian: a librarian's choice of the best of the Web: selective, alphabetical listing of resources relating to SCI
- MEDLINEplus: listing of WWW sources; access to Medline: a bibliographic database, maintained by the National Library of Medicine, covering the fields of medicine, nursing, dentistry, veterinary medicine, the health care system, and the preclinical sciences; more than 8.8 million references (many with abstracts) to articles published in 3800 biomedical journals; most are technical in nature; look under the heading "Literature Reviews" in the Northwest Regional Spinal Cord Injury System's Spinal Cord Injury Update newsletter for a preview of articles the editors have selected from a monthly screening of MEDLINE for articles on spinal cord injury
- PoinTIS: online manual on SCI for patients and their families; online manuals on SCI for members of the rehabilitation team; glossary
- Spinal Cord Injury Resources: lists treatment centers; research; bulletin boards; newsletter/magazines; articles/pamphlets; images; books to buy
- Spinal Cord Index: lists treatment centers; research; bulletin boards; newsletters/magazines; articles/pamphlets; images
- Spinal Cord Injury Links: maintained by the Spine & Peripheral Nerve Surgery Center, Massachusetts General Hospital/Harvard Medical School
- Spinal Cord Injury, Stroke, and Paralysis Guide to Support Organizations: address and contact information for SCI organizations; maintained by Massachusetts General Hospital
- Spinal Cord Injury Network: hosted by the University of Alabama at Birmingham; extensive listing of SCI resources including pamphlets, articles, books, videos, organizations, health care facilities, periodicals, vendors, and training programs; can be searched by keyword or topic; there are links to documents or Web sites where available; includes discussion forum
- Spinal Cord Injury Ring: collection of Web pages on SCI maintained by the Northern California Spinal Cord Injury System
- ABLEDATA: database of more than 23,000 assistive technology products from approximately 2,600 domestic and international manufacturers and distributors
- New Mobility Interactive Cafe: chat room and message board; full text of articles of New Mobility with a searchable archive; links to other resources
- CenterWatch: listing of SCI clinical trials
- Cleveland FES Center: information on the use of functional electrical stimulation to improve physical functioning of SCI individuals
- Christopher Reeve Paralysis Foundation: nonprofit organization founded in 1982 to encourage and support research for a paralysis cure; Website provides information on their research program, full-text of their newsletters, a discussion forum, and a calendar of events; merger of the American Paralysis Association and the Christopher Reeve Foundation
- Miami Project to Cure Paralysis: international center for SCI research at the University of Miami School of Medicine
- National Institute on Neurological Disorders and Stroke (NINDS): federal government agency, part of the National Institutes of Health and the U.S. Public Health Service; supports biomedical research on disorders of the brain and nervous system; use search engine to obtain links to documents on workshops, press releases, grants, research centers, organizations, and fact sheets on SCI and related health problems; go to Health Information Section to locate a fact sheet on a particular health problem
- Spinal Cord Society: international Organization For Cure Research & Treatment of Spinal Cord Injury Paralysis & Related Problems since 1978; information on cure research
- THINK FIRST Foundation: mission is to prevent brain and spinal cord injuries through the education of individuals
- Pushin' On: newsletter of the RRTC in Secondary Complications at the University of Alabama
- Spinal Cord Injury Update: newsletter produced by the Northwest Regional Spinal Cord Injury System; listing of articles by subject, forum reports on issues of importance to SCI individuals, and abstracts of SCI articles selected from a monthly screening of the National Library of Medicine's MEDLINE database
- The Rehabilitation Research and Training Centers (RRTC's) in SCI conduct research into rehabilitation and develop teaching and training programs based on this research. The Web sites describe their activities and publications.
- National Clearinghouse of Rehabilitation Training Materials (NCRTM) Catalog Database: search for materials by title, author, publisher, publication date, or keyword
- The RRTC in Secondary Complications in Spinal Cord Injury
- The RRTC in Aging with Spinal Cord Injury
- Rehabilitation Research Center (RRC) for Traumatic Brain Injury (TBI) and Spinal Cord Injury (SCI) Santa Jose, CA: Model System of Care; includes online version of SCI-FYI, a directory of hundreds of services for SCI individuals
- Shriners Hospitals: Shriners maintain three SCI Rehabilitation Units designed specifically for children and adolescents
- Karolinska Institutet: medical university in Stockholm, Sweden; use their search engine to find publications on spinal cord injury research
- Northwest Regional Spinal Cord Injury System, Seattle, WA: Model System of Care; full-text patient pamphlets and reports of SCI Forums, a monthly speaker series on living with SCI; full-text of articles from Spinal Cord Injury Update newsletter
- Why Files: National Institute for Science Education project which provides clear discussion of several SCI research proejcts
- The Model Spinal Cord Injury Systems (MSCIS): access to the Model Systems of Care which are 16 research and demonstration projects delivering medical, vocational, and other rehabilitation services to individuals with SCI; the site can be searched for specific information on research projects by keyword, investigator, organization, city or state; the Highlights Section illustrates the latest technology, information, and events; the Resources section provides informational material on SCI
- Reeve-Irvine Research Center: established to study injuries to, and diseases of, the spinal cord, with the goal of finding a cure
- The National Spinal Cord Injury Statistical Center (NSCISC) collects and distributes information on demographic, clinical, psychosocial, vocational, and follow-up variables of SCI
- Access-Able Travel Source: provides access information for mature and disabled travelers
- Eastern Paralyzed Veterans Association (EPVA): regional chapter of the Paralyzed Veterans of America which serves SCI veterans in New York, New Jersey, Eastern Pennsylvania, and Connecticut; Website provides announcements of major issues affecting paralyzed veterans, a monthly newsletter, and a listing of their publications
- Paralyzed Veterans of America (PVA): congressionally charted service organization representing veterans of the armed forces; Website describes PVA's extensive programs in research, education, advocacy, government relations and veterans' benefits
- Department of Veterans Affairs: information and documents on SCI care policies, procedures, benefits, research and facilities for veterans
GENERAL
ASSISTIVE TECHNOLOGY
CHAT ROOMS
CLINICAL TRIALS
ORGANIZATIONS
PUBLICATIONS
REHABILITATION
RESEARCH
-
Alabama: University of Alabama at Birmingham SCI Care System
UAB Spain Rehabilitation Center
619 19th St S. Room 190
Birmingham, AL 35249-7330
205-934-3330 / 205-975-9754 (Fax)
California: Regional SCI Care System of Southern California
Rancho Los Amigos Med Center, HB 121
7601 East Imperial Highway
Downey, CA 90242
562-401-7048
Northern California SCI System
Santa Clara Valley Medical Center
950 South Bascom Ave, Suite 2011
San Jose, CA 95128
408-295-9896 x 16
Colorado: Rocky Mountain Regional SCI System
Craig Hospital
3425 South Clarkson Street
Englewood, CO 80110
303-789-8220 / 303-789-8470(Fax)
Florida: South Florida SCI System
University of Miami School of Medicine
PO Box 016960, Mail Locator R-48
Miami, FL 33101
305-243-7106 - FAX# 305-243-3395
Georgia: Georgia Regional SCI System
Shepherd Center
2020 Peachtree Road, NW
Atlanta, GA 30309
404-350-7582
Massachusetts: New England Regional SCI Center
Boston University Medical Center
One Boston Medical Center Place
Boston, MA 02118-7380
617-638-7380 / 617-638-7313 (Fax)
Michigan: University of Michigan Model SCI System
University of Michigan Medical Center
1500 E Medical Center Drive
Ann Arbor, MI 48109
734-936-7052 /734-936-5492 (Fax)
Missouri: Missouri Model SCI System
Univ Missouri-Columbia, Dept PM&R
One Hospital Dr, DC046.00
Columbia, MO 65212
573-882-6271
New Jersey: Northern New Jersey SCI System
Kessler Institute for Rehabilitation
1199 Pleasant Valley Way
West Orange, NJ 07052
973-243-6805
New York: Mount Sinai SCI Model System
Mt. Sinai Medical Center
1425 Madison Ave
New York, NY 10029-6574
212-659-9371
Pennsylvania: Regional SCI System of Delaware Valley
Thomas Jefferson University Hospital
132 South 10th Street, 375 Main Bldg.
Philadelphia, PA 19107
215-955-6579 / 215-955-3729(FaxX)
Department of Physical Medicine and Rehabilitation
School of Medicine, University of Pittsburgh
3471 5th Ave Suite 90, Pittsburgh PA 15213
412-648-6654
Texas: Texas Regional SCI System
The Institute for Rehabilitation & Research
1333 Moursund Avenue
Houston, TX 77030
713-797-5908 / 713-799-7017(Fax)
Virginia: VCU/MCV SCI Model System
Medical College of Virginia, Box 980661
Richmond, VA 23298-0677
804-828-0861 / 804-828-5074(Fax)
Washington: Northwest Regional SCI System
Department of Rehab Medicine
Box 356490
Seattle, WA 98195
206-543-8171 / 206-685-3244 (Fax)